Take Action; Participate in Our Survey


If you or a loved one has  ever had a diagnosis of amyloidosis with heart involvement, please take a few moments to fill out this important survey. Martha Grogan, MD, a cardiologist at the Mayo Clinic and the Amyloidosis Research Consortium designed this survey in order to study the barriers that patients experience with pursuing a diagnosis.   The results will be shared at the annual American Cardiology Conference in March and used to educate, engage and inform medical professionals about ways to diagnose patients earlier. You can play an important role in helping us educate physicians.

Please spare a few minutes to help us raise awareness of amyloidosis.



Rare, Underserved and Underdiagnosed


Amyloidosis is a disorder caused by proteins that possess abnormal conformational features leading them to aggregate and infiltrate tissues in the form of amyloid fibrils. Systemic amyloidosis is a disease that can damage the heart, kidneys, liver, soft tissue and nervous system, resulting in multi-organ failure and death. 

Awareness and understanding of these diseases is the first step to delivering better outcomes for patients.