ARC Publications

 ARC's library contains publications and articles published in peer reviewed journals on the latest research that ARC has been engaged in.

Webinar Series: Controversies in AL and ATTR Amyloidosis

The XVth International Symposium on Amyloidosis. Uppsala, Sweden. 5th July 2016


Giampaolo Merlini

Is NT-proBNP a relevant biomarker for ATTR amyloidosis?

The Voice of the Patient

Summary report resulting from the first Externally-led Patient Focused Drug  

Rationale, Application, and Clinical Qualification for Use of 



Submitted to FDA December 2016

Published June 2016

Published October 2015


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Rationale, Application and Clinical Qualification for NT-proBNP as a Surrogate End Point in Pivotal Clinical Trials in Patients with AL Amyloidosis

Published: Leukemia July 2016

Author: G Merlini et al.

Light Chain Amyloidosis Patient Experience Survey from the Amyloidosis Research Consortium


Published: Advances in Therapy 2015

Author: I Lousada et al.


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Recommendations From the Amyloidosis Research Consortium Educational Roundtable at the American College of Cardiology Annual Meeting, April 1, 2016

International Symposium of Amyloidosis 2016

Patient Experience With Light Chain Amyloidosis: A Survey From the Amyloidosis Research  Consortium


Heart Failure Society of America             2015

Patient Experience With Hereditary and Wild-type Amyloidosis: A Survey from the Amyloidosis Research Consortium


European Congress on Hereditary Amyloidosis                                                 2015