Have You Participated in Ionis’s Phase 3 Clinical Trial of Inotersen? 



If so we would like to hear from you.

The ARC will be providing the FDA with detailed accounts of the experiences of patients who participated in the trial.


By writing a brief description of your experience, we will be able to provide a detailed account of the impact of Inotersen on patients' lives. Clinical trials gather valuable data on clinical aspects of a patients experience. It is also very important to describe how these changes may affect the patient in every day life, both positive and negative experiences are important to understand.


Please use the below narrative instructions to provide a brief description of your experience before and during  your participation in the Phase 3 Clinical Trial of Inotersen (IONIS TTRrx).


Please submit your story to us at:

If you have any questions please don't hesitate to contact us at the above email or call us on:  617-899-8810