MY AMYLOIDOSIS PATHFINDER

 

 

Finding the best amyloidosis care is not easy. Let MAP help you discover, learn about, and contact treatment centers and clinical trials that are right for you.

My Amyloidosis Pathfinder [MAP] was created by the Amyloidosis Research Consortium to help connect amyloidosis patients to appropriate treatment centers and clinical trials for their disease. By answering our short questionnaire MAP is able to match you to centers and trials specific to your condition.

 
 

Finding a Treatment Center

Finding the right treatment center is a crucial part of your care. MAP only shows you treatment centers with the capability to provide excellent treatment for your type of amyloidosis. We provide extensive information on each center, allowing you to make an informed decision.


Finding a Clinical Trial

MAP also matches you to clinical trials for which you may be eligible. In amyloidosis, clinical trials can be a great way to access promising new treatments. Clinical trials are a critical step in the development of much needed drugs for amyloidosis patients. Especially in a rare disease, these important trials are often significantly delayed due to lack of participants. This can seriously slow down the rate at which new drugs are discovered, tested, and made available to patients.


What are Clinical Trials

Clinical trials are research studies that are designed to explore whether a medical strategy, drug treatment, or device is safe and effective for patients. Studies can also look at other aspects of care, such as improving quality of life for patients.


Why Clinical Trials are Important

Clinical trials allow researchers to test the safety and effectiveness of new, promising drugs. Before any drug can be approved, it must be rigorously tested in clinical trials. Without the participation of patients, new treatments and cures will never happen. In addition, participating in a clinical trial may be a great way for patients to access new treatments before they become available. Especially in a rare disease such as amyloidosis, clinical trials can be a vital resource for your care.