The ARC leadership team are deeply committed to amyloidosis and work tirelessly to deliver our programs which are fully integrated across the entire research and development continuum and into the clinic. These closely align with our mission, and focus on the areas that are most important, can best be delivered by ARC and most likely to have the biggest impact on patients, short and long-term.

Leadership Team

Isabelle Lousada

Isabelle Lousada, President & CEO

Isabelle Lousada has been the driving force behind the ARC, building successful collaborations and programs across the sectors to advance the science and understanding of the amyloidosis diseases

Isabelle was diagnosed with AL amyloidosis, and was one of the first patients to successfully undergo a stem cell transplant.  For the past twenty years, she has been committed to empowering other patients while serving on a number of boards and committees, speaking at leadership meetings and key events to encourage research, increase access, and support the critical and unmet needs of amyloidosis patients.



Eric Low OBE, Head of Global Strategy

Eric has joined the ARC as Head of Global Development. Over the past 20 years Eric, while at the helm of Myeloma UK, an Internationally renowned non-profit, has committed more funding than any other organization to amyloidosis research. His expertise, keen interest in ensuring patients have access to treatment, and visionary work will catalyze the ARC’s programs to accelerate drug development.




Kristen Hsu, Executive Director of Clinical Research

Kristen has over ten years of clinical operations experience within the pharmaceutical industry. She has a wealth of experience in managing complex global clinical trials for novel treatments of rare diseases.  Kristen is  building and overseeing the ARC’s clinical research program and manages a prioritized portfolio of vital research.

Board of Directors


Giampaolo Merlini, MD


Director of the Center for Research and Treatment of Systemic Amyloidosis, and of the Biotechnology Research Laboratories, Scientific Institute Policlinico San Matteo, University of Pavia, Italy 

Raymond Comenzo, MD


Director, Blood Bank and Stem Cell Processing Laboratory; Professor, Tufts University School of Medicine 


Sarah Cairns-Smith, Senior Partner and Managing Director Boston Consulting Group 

Dena Heath, Northern California Amyloidosis Support Group Facilitator

Isabelle Lousada, CEO

Eric Low, Head of Global Strategy

Steering Committee

A multidisciplinary team of experts in the field of amyloidosis oversees the ARC’s scientific agenda and strategic direction.

Angela Dispenzieri MD, Mayo Clinic

Raymond Comenzo MD, Tufts Medical School

Eric Low OBE, Myeloma UK

Jeffery Kelly PhD, Scripps Research Institute

Mathew Maurer MD, New York-Presbyterian Hospital

Giampaolo Merlini MD, University of Pavia

Vaishali Sanchorawala MD, Boston Medical Center

Ashutosh Wechalekar MD, Royal Free Hospital