For Patients and Caregivers 



If you are a patient or caregiver of a patient who received a diagnosis of any type of amyloidosis with heart involvement, please take a few moments to fill out this important survey.

Martha Grogan, MD, a cardiologist at the Mayo Clinic and the Amyloidosis Research Consortium designed this survey in order to study the barriers that patients experience with pursuing a diagnosis.

These surveys will also be looking at regional differences in patient experiences. The results will be published and used to develop specialized programs to educate, engage and inform medical professionals about ways to diagnose patients earlier. You can play an important role in helping us educate physicians.

Privacy is of the utmost importance to us. No personal information will be shared.

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