Month: November 2015

Patient Forum with FDA
The Amyloidosis Research Consortium (ARC) held an amyloidosis patient forum with the FDA in Silver Spring, MD on November 16. 2015.  It was an historic, standing room only event for our community. The room was filled with patients that were...
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AL Amyloidosis: Patient Experience Published
533 patients took part in our survey earlier this year and it has given some very valuable insight into the experiences of patients with AL and ATTR amyloidosis. The information has been shared at a number of key medical meetings...
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ARC Poster Presentation
This poster detailed the experience of hereditary ATTR and wild-type TTR amyloidosis patients. It outlines the significant challenges for obtaining a correct diagnosis and access to appropriate therapy. The poster was shown at the 1st European Congress on Hereditary ATTR...
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