Category: Advocacy

Rare Disease Week Needs You
Rare disease day is on February 28th. The entire week provides a unique opportunity to raise awareness of key policy issues that affect amyloidosis. Patient organizations, NIH and other government entities, medical researchers, and pharmaceutical companies developing treatments for rare...
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ARC Submits Guidance on Drug Development in AL Amyloidosis to FDA
The Amyloidosis Research Consortium (ARC) submitted a draft guidance for industry on developing drugs for AL amyloidosis to the Food and Drug Administration (FDA), to improve the design of clinical trials and accelerate the review of potential therapies. Patients with...
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Remembering Dale Schenk
Dale Schenk was born May 10, 1957 in Glendora, California to Walter Bernard Schenk, a firefighter, and Rosemary Schenk, a family therapist. He received an undergraduate degree in biology in 1979 from the University of California at San Diego, where...
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Amyloidosis Voice at Global Genes Summit
On September 22nd and 23rd two members of the Amyloidosis Research Consortium were invited speakers at the Global Genes 5th Annual RARE Patient Advocacy Summit event in Huntington Beach, California. ARC CEO Isabelle Lousada delivered a presentation on The Patient's Role in...
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ARC Educational Power Pack for Healthcare Professionals
Please Note: This information was provided on July 2016. As we update our internal documents, we will share the newest information. As part of our mission to improve early diagnosis and accelerate amyloidosis treatment, ARC has developed a set of...
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