“4 doctors thought I had Athlete’s Heart. I didn’t.”

GREG FOSTER
Olympian

Patients often see 4+ physicians before getting an accurate diagnosis.

Amyloidosis patients don’t have time to waste. Join the race to diagnose it earlier. Huge strides are currently being made in treatment. The best outcomes rely on an early diagnosis.

We all have a part to play.

I am a…

Physicians

ARC’s curated portfolio of dynamic tools will support you in diagnosing and treating patients.

Amyloidosis is a group of significantly under-diagnosed rare diseases. Despite recent advances in the treatment landscape most patients will not see the benefit as a result of significant, often fatal delays in diagnosis.

ARC’s tools are designed to support physicians in diagnosis and treating for all types of amyloidosis.

  • Clinician’s App
    Physician reference tool for diagnosis and treatment in clinical practice.
  • My Amyloidosis Pathfinder (MAP)
    Matches patients to treatment centers and clinical trials.
  • Physician’s Education
    Tools, CME courses and guidelines to support diagnosis and treatment of amyloidosis.

Top 5 Red Flag Symptoms

  1. Heart failure with preserved ejection fraction (HFpEF)
  2. Intolerance of ACE inhibitors and beta blockers
  3. Low voltage to mass ratio
  4. Delayed enhancement on cardiac MRI
  5. Apical sparing on longitudinal strain imaging

Patients

Most doctors don’t know they missed the diagnosis, does yours? Together we can educate doctors about amyloidosis.

Amyloidosis is easy to miss, highlighting the need for education on key symptoms. Let ARC send your doctor a missed diagnosis educational pack.

Take a few minutes to provide ARC with the details of the doctors you would like to, anonymously or otherwise, share an education pack with. We will take care of the rest!

LET’S TELL THEM 

Missed Diagnosis Educational Pack

Includes:

  1. Cover letter
  2. Red flag symptoms checklist
  3. ARC Physician pack
  4. Cardiac Alert
  5. Clinician’s app

Diagnosing amyloidosis is our priority. Support this mission.

DONATE

AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
320 Nevada Street, Suite 210 Newton, MA 02460 USA | 617-467-5170
22 (G1) FORTH STREET, EDINBURGH, UK EH1 3LH | +44 (0) 131 550 3866
arc@arci.org

ARC is a 501(c)(3) nonprofit organization