Advocates Take on The Hill
"By sharing my story, they not only learned about amyloidosis; they also heard about our community's desperate need for approved treatments and pledged their support" I attended Rare Disease Week on Capitol Hill (February 29th– March 4th) as a Rare...
Read More
Blogging to Raise Awareness of Amyloidosis
To highlight amyloidosis during rare disease week this year Isabelle Lousada, president and CEO of the Amyloidosis Research Consortium, was invited to provide a guest blog for PhRMA publication The Catalyst. Isabelle talks about the experiences that led her to...
Read More
Launching the Industry Advisory Council
On 23rd February 2016, under the leadership of Mike Zelin, the ARC’s Director of Industry Relations, we held the first meeting of the ARC Industry Advisory Council. This groundbreaking meeting brought together key leaders from seven pharmaceutical companies. These companies...
Read More
A Landmark Year for ARC
 A New Era, Creating A New Model The launch of the Amyloidosis Research Consortium (ARC) earlier this year was in direct response to this pivotal moment in the history of amyloidosis. With potentially effective therapies for amyloidosis on the horizon,...
Read More
Patient Forum with FDA
The Amyloidosis Research Consortium (ARC) held an amyloidosis patient forum with the FDA in Silver Spring, MD on November 16. 2015.  It was an historic, standing room only event for our community. The room was filled with patients that were...
Read More

320 Nevada Street, Suite 210 Newton, MA 02460 USA | 617-467-5170

ARC is a 501(c)(3) nonprofit organization