Finding Support

Greg Foster

 

Olympic athlete Greg Foster shares his journey from symptoms to diagnosis after seeing more than a dozen doctors. Read more

Having a rare disease can feel isolating. Finding the right support is critical for you and your caregivers to be able to adjust to living with amyloidosis.

There are a variety of support groups all over the world that can connect you to patients and caregivers living through similar experiences.

ARC has a number of resources to assist you through your journey. We can connect you to medical professionals and treatment centers so that your questions are answered, and you have access to the quality care you deserve.

U.S. Support Groups

The Amyloidosis Support Groups website has details of support groups across the US.

Other United States amyloidosis support groups:

 

There are several public and closed Facebook groups including:

Rare Disease Organizations
Organizations for Caregivers

Get Information and Support

A specialist on our team can provide treatment information, resources and the support you need to navigate your diagnosis.

(617) 467-5170

Find Clinical Trials and Treatment Centers

My Amyloidosis Pathfinder (MAP) connects amyloidosis patients to appropriate treatment centers and clinical trials specific to the patient’s type and stage of disease.

Learn More

AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
320 Nevada Street, Suite 210 Newton, MA 02460 USA | 617-467-5170
22 (G1) FORTH STREET, EDINBURGH, UK EH1 3LH | +44 (0) 131 550 3866
arc@arci.org

ARC is a 501(c)(3) nonprofit organization