Phone Interview Research Study for TTR FAP Patients

Phone interview research study for patients diagnosed with Transthyretin Familial Amyloid Polyneuropathy (TTR FAP) to support a new drug development program for treatment of TTR-FAP.

The purpose of this phone interview research study is to gather information about the symptoms and experiences of patients with Transthyretin Familial Amyloid Polyneuropathy (TTR FAP) and to pilot test a questionnaire for future research studies to develop a new drug for the treatment of TTR-FAP. The interview would last approximately 60 minutes, and you would be compensated for your time. There is no medication administration involved with this study. This study is sponsored by GlaxoSmithKline. This study will be conducted by ICON, a health research organization. Please note that GlaxoSmithKline will not receive any identifying information, and any information that you provide will be reported in a way that protects your privacy and anonymity.


For more information about this study, please email France G. Sowell at  or call 1-866-893-0282

320 Nevada Street, Suite 210 Newton, MA 02460 USA | 617-467-5170

ARC is a 501(c)(3) nonprofit organization