Resources

ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.

 

CME
Amyloidosis in Cardiology Practice: A Race Against Time (CME / ABIM MOC / CE)
The first part of this course focuses on the epidemiology and clinical presentations of cardiac amyloidosis, the clinical burden and impact of delayed diagnosis. The second part focuses on patient assessments and diagnosis of amyloidosis, as well as the latest advances in treatment for hATTR.
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CME
Publications
Advancing Amyloidosis: A Research Roadmap
The white paper contains the highest priorities and a research framework for the systemic amyloidosis diseases. This consensus document was developed through a rigorous process with the participation of 71 international experts from academic, clinical, regulatory, patient advocacy, health policy, industry, and other key areas. This publication is intended to identify, improve and accelerate a drug development pathway for the systemic amyloidosis diseases. Read the white paper: [real3dflipbook id='1']
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Publications
CME
Recognizing and Managing hATTR Cardiac Amyloidosis: Bridging Evidence and Clinical Practice (CME / ABIM MOC)
Amyloidosis may present in a wide variety of ways, posing challenges to its diagnosis and treatment. This activity will address the different types of cardiac amyloidosis, the clinical manifestations of hATTR amyloidosis, and present treatment strategies based on the most recent clinical data. Release date: Oct 15 2018, Expiration date: Oct 14, 2019
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CME
CME
New Clinical Insights Into the Pathology of Amyloidosis (CME / ABIM MOC)
ARC and Medscape have created this CME course, the goal of this activity is to increase awareness of the pathologic features among the different types of systemic amyloidoses and how to accurately diagnose the disease. Presented by Maria M. Picken, MD, PhD   Released: 12/22/2018. Valid for credit through: 12/22/2019      
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CME
Patients
Voice of the Patient
Video: Voice of the Patient
In this video patients share their experiences of living with AL and ATTR amyloidosis. They discuss the needs for research, clinical trials and their dreams. This video was shared with the FDA in 2015 during ARC's Patient Focused Drug Development Meeting.
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Patients
Patients
Webinars
Webinar: Navigating work and amyloidosis (pre-register)
This webinar provides information on navigating work and amyloidosis. Covering the laws that can protect you as you work through treatment, taking job protected time off if necessary, and how to pay for time off. This webinar will be hosted on 7th November at 11am EST. Use link below to register.
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Patients
Patients
Webinars
Webinar: Choosing Healthcare Insurance 101
This webinar provides helpful information on what to consider when choosing a healthcare insurance plan. This webinar was hosted by Triage Cancer and funded by Alnylam Pharmaceuticals.
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Patients
Patients
Webinars
Webinar: Affording New Treatments
An informative webinar, led by speaker Beth Halpern, Partner at Hogan Lovells US LLP, providing a detailed explanation of the different pathways available to support patients in accessing these new treatments
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Patients

AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
320 Nevada Street, Suite 210 Newton, MA 02460 USA | 617-467-5170
arc@arci.org

ARC is a 501(c)(3) nonprofit organization