FDA appoints Public Private Partnership Liaison to ARC
To focus on the challenges faced by AL amyloidosis, a particularly complex and multi-systemic disease, and bridge the gaps in drug discovery and development . (more…)
Patient Perspectives from the FDA Public Meeting: the Impact of Rare Diseases
I recently had the opportunity to attend this public meeting at the FDA to discuss the Patient Perspectives on the Impact of Rare Diseases. This meeting was held as opportunity to bring the voices of patients and caregivers to the...
Our ARC team of amyloidosis patients, caregivers and ARC staff took part as advocates in key activities during the week of Rare Disease Day, which is held on February 28th each year. (more…)
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In this ARC Talks Webinar, Dr. Nelson Leung focused on renal involvement in AL, AA, ALECT2 and ATTR amyloidosis, while discussing treatment and response assessments for each type.
Original Presentation Date:
August 21, 2023
Key Webinar Highlights:
0:00 — Introduction
2:30 — Start of presentation
3:03 — Kidney involvement in AL amyloidosis
15:30 — Kidney involvement in in AA amyloidsis
20:34 — Kidney involvement in in Alect-2
24:37 — Kidney involvement in wild type amyloidosis
30:34 — Kidney transplants for amyloidosis patients