Resources Category: Patients

Patients
Voice of the Patient
Video: Voice of the Patient
In this video patients share their experiences of living with AL and ATTR amyloidosis. They discuss the needs for research, clinical trials and their dreams. This video was shared with the FDA in 2015 during ARC's Patient Focused Drug Development Meeting.
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Patients
Patients
Webinars
Webinar: Navigating work and amyloidosis (pre-register)
This webinar provides information on navigating work and amyloidosis. Covering the laws that can protect you as you work through treatment, taking job protected time off if necessary, and how to pay for time off. This webinar will be hosted on 7th November at 11am EST. Use link below to register.
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Patients
Patients
Webinars
Webinar: Choosing Healthcare Insurance 101
This webinar provides helpful information on what to consider when choosing a healthcare insurance plan. This webinar was hosted by Triage Cancer and funded by Alnylam Pharmaceuticals.
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Patients
Patients
Webinars
Webinar: Affording New Treatments
An informative webinar, led by speaker Beth Halpern, Partner at Hogan Lovells US LLP, providing a detailed explanation of the different pathways available to support patients in accessing these new treatments
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Patients
Patients
Discover Clinical Trials and Treatment Centers with My Amyloidosis Pathfinder (MAP)
Finding the best amyloidosis care is not easy. ARC created My Amyloidosis Pathfinder (MAP) to help you discover, learn about, and contact treatment centers and clinical trials that are right for you. By answering our short questionnaire, MAP is able to match you to centers and trials specific to your condition.
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Patients
Patients
Video: Clinical Trials 101
Have you ever wondered where medicines come from? Or how medicines are tested for efficacy and safety before becoming commercially available? Find out what clinical trials are and the purpose of this rigorous testing process. This video was produced as part of the Americans for Cures Foundation's Report Back to the Public.
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Patients
Patients
Video: Cardiac Amyloidosis – Treatment Options
This video, presented by Dr. Martha Grogan, a leading amyloidosis cardiologist, provides an in depth overview regarding the treatment options for patients who have cardiac amyloidosis.
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Patients
Patients
Video: Amyloidosis – What You Need to Know
This video, presented by Dr. Morie Gertz, a leading amyloidosis hematologist, provides an overview of: what amyloidosis is, symptoms of amyloidosis, the advantages that Mayo Clinic provides for patients, and, how Mayo's research and resources are shaping its treatment of amyloidosis.
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Patients

AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
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arc@arci.org

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