Resources Category: Patients

Patients
Discover Clinical Trials and Treatment Centers with My Amyloidosis Pathfinder (MAP)
Finding the best amyloidosis care is not easy. ARC created My Amyloidosis Pathfinder (MAP) to help you discover, learn about, and contact treatment centers and clinical trials that are right for you. By answering our short questionnaire, MAP is able to match you to centers and trials specific to your condition.
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Patients
Patients
Video: Clinical Trials 101
Have you ever wondered where medicines come from? Or how medicines are tested for efficacy and safety before becoming commercially available? Find out what clinical trials are and the purpose of this rigorous testing process. This video was produced as part of the Americans for Cures Foundation's Report Back to the Public.
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Patients
Patients
Video: Cardiac Amyloidosis – Treatment Options
This video, presented by Dr. Martha Grogan, a leading amyloidosis cardiologist, provides an in depth overview regarding the treatment options for patients who have cardiac amyloidosis.
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Patients
Patients
Video: Amyloidosis – What You Need to Know
This video, presented by Dr. Morie Gertz, a leading amyloidosis hematologist, provides an overview of: what amyloidosis is, symptoms of amyloidosis, the advantages that Mayo Clinic provides for patients, and, how Mayo's research and resources are shaping its treatment of amyloidosis.
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Patients
Patients
Video: Cardiac Amyloidosis – What is Amyloid and How Does it Affect the Heart
This video, presented by Dr. Martha Grogan, a leading amyloidosis cardiologist, includes a review of what every patient needs to know about cardiac amyloidosis, the tests you need to evaluate your heart, and what the treatments for cardiac amyloidosis mean in relationship to the disease.
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Patients
Patients
Video: Cardiac Amyloidosis – Tests and Assessments
This video, presented by Dr. Martha Grogan, a leading amyloidosis cardiologist, discusses the tests that are used in diagnosis of cardiac amyloidosis and how the heart is assessed after a person has undergone treatment.
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Patients
Patients
Webinars
Webinar: What is Expanded Access?
This webinar covers access to innovative new therapies through expanded access programs with guest speakers Jennifer Miller, PhD, Assistant Professor at Yale University School of Medicine and Alison Bateman-House, PhD, MPH, Assistant Professor at NYU School of Medicine.
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Patients

AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
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