Resources Category: Publications

Publications
(99m) Technetium-Pyrophosphate Imaging for Transthyretin Cardiac Amyloidosis
These practice points from the American Society of Nuclear Cardiology (ASNC) are to identify the critical components involved in performing (99m) Tc-PYP imaging for the evaluation of cardiac transthyretin amyloidosis (ATTR).
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Publications
Publications
Bridging the Gap: ARC’s Research Strategy
ARC's comprehensive research strategy promotes a "from the patient's bedside back to bench" model, where patient's needs drive our prioritized portfolio of research. Read in detail our research strategy, and learn how we intend to achieve and measure our goals. [real3dflipbook id='2']
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Publications
Publications
Hereditary Transthyretin Amyloidosis (hATTR): Burden of Disease and Treatment Perspectives Poster
ARC’s research on Hereditary Transthyretin Amyloidosis (hATTR): Burden of Disease and Treatment Perspectives, was presented at the XII Paulista Congress of Neurology in Brazil. The English version of the poster is translated from Portuguese, and the data can be used by the Brazilian HTA during their evaluation of new treatments for patients with hATTR neuropathy.
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Publications
Publications
Amyloidois Research Consortium Cardiac Amyloidosis Survey: Results from Patients with AL and ATTR Amyloidosis and their Caregivers
Amyloidosis Research Consortium Cardiac Amyloidosis Survey: Results from Patients with AL and ATTR Amyloidosis and their Caregivers, was presented at the XVIth International Symposium on Amyloidosis from March 26-29, 2018 in Kumamoto, Japan. This poster presents results from 699 patients and caregivers and highlights the complex and burdensome diagnostic journey in amyloidosis.
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Publications
Publications
Advancing Amyloidosis: A Research Roadmap
The white paper contains the highest priorities and a research framework for the systemic amyloidosis diseases. This consensus document was developed through a rigorous process with the participation of 71 international experts from academic, clinical, regulatory, patient advocacy, health policy, industry, and other key areas. This publication is intended to identify, improve and accelerate a drug development pathway for the systemic amyloidosis diseases. [real3dflipbook id='1']
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Publications
Publications
Voice of the Patient Report
A comprehensive report submitted to the FDA in 2016 by ARC. This is a detailed summary of the patient testimony presented at the Patient-Focused Drug Development meeting. This report will serve a critical function in communicating to both FDA review staff and industry the improvements that patients want and hope to see in their daily lives.    
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Publications
Publications
Rationale, Application and Clinical Qualification for NT-proBNP as a Surrogate End Point
Published: Leukemia, July 2016 | Author: G Merlini et al.
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Publications
Publications
Light Chain Amyloidosis Patient Experience Survey
Published: Advances in Therapy, 2015 | Author: I Lousada et al.
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Publications

AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
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